Wandsworth haemoglobinopathy service launch thalassaemia support group

This National Thalassaemia Day, we’re celebrating our staff who support communities living with the condition.

Thalassaemia is the name for a group of inherited conditions that affect a substance in the blood called haemoglobin. People with thalassaemia produce either no, or too little, haemoglobin, which is used by red blood cells to carry oxygen around the body.  This can make them very anaemic (tired, short of breath and pale).

Our haemoglobinopathy service in the London boroughs of Hammersmith and Fulham, Kensington and Chelsea, and Wandsworth, support children and adults living with Sickle Cell and Thalassaemia in the community.

CLCH teams in Wandsworth recently launched a coffee morning support group for parents of children with Thalassaemia where clinicians, including health visitors and nurses, discussed with the group the services they provide. Parents engaged very well with the staff and the visiting massage therapist from St Georges Hospital, and came away with a strong network of like-minded parents who they planned to continue to meet with on a regular basis.