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North West London residents, service users and families invited to play critical role in improving end-of-life care

Published: 9th March 2022

Local residents in North West London are being invited to the latest in a series of engagement events about community-based specialist palliative care services. The events aim to seek feedback from residents on how they should provide high quality care and a good patient, family and carer experience.

Community-based specialist palliative care services are palliative and end of life care services that are provided in a community setting (i.e. patient’s home, hospice inpatient unit or day care services, care home, community hospital/centre) by services with care professionals who have been specialist trained in this field.

The engagement events form part of a review of these services, being led by the North West London Integrated Care System (ICS), of which CLCH is a partner.       

Dr Lyndsey Williams, NW London GP Clinical Lead for End of Life and Care Homes said:

“It is widely recognised that when caring for someone in the last year of their life, we have only one chance to get it right. I encourage local people across North West London to join these events and tell us what is important to them as we look to develop a community-based specialist palliative care service that delivers high quality care and excellent patient experience for all. We can’t do this without you and we need your support and input.

“We have seen what a difference specialist palliative care services can make to a patient and their families and carers as they come to the end of their life but unfortunately we have seen what can happen if the care and support is not there and the damaging legacy for those left behind. That is why it's so important that we work together to develop services that are clinically to a high standard but also meet what patients and family’s need."

The events take place throughout March 2022 and include:

Event 1 - Hounslow and Ealing (with a focus on ethnic minorities) - Thursday 10 March 6:30 to 8pm Click here to register

Event 2 - Westminster, Kensington and Chelsea, Hammersmith and Fulham (with a focus on ethnic minorities) - Tuesday 15 March 6:30 to 8pm

Click here to register

Event 3 – NW London wide (with a focus on mental health) - Wednesday 16 March 2022, 6.30 to 8pm

Click here to register

Event 4 - Brent, Harrow and Hillingdon (with a focus on ethnic minorities) - Thursday 17 March 2022, 6.30 to 8pm

Click here to register

Event 5 - NW London wide (feeding back what we have heard so far and actions we have taken as a result), Friday 18 March 2022, 9.30 to 11.30am

Click here to register             

 

Views and feedback can also be given by completing an online survey here (for those with experience of community-based specialist palliative care) or here (for those with no experience to date of community-based specialist palliative care).

The survey is also available as to download and complete and return to return to the review team at nhsnwlccg.endoflife@nhs.net or by post to Community-based specialist palliative care review, North West London Clinical Commissioning Group, Ferguson House, 15 Marylebone Road, London, NW1 5JD.

For further information please email nhsnwlccg.endoflife@nhs.net or visit www.nwlondonics.nhs.uk/get-involved/cspc

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