FOI/25/418

Request

I am conducting research into perceptions of Down Syndrome in antenatal care and would like to request copies of communication materials sent to expectant women within your Trust.

Specifically, I would appreciate copies of the following:

• Letters sent to expectant women advising of screening test results following combined or quadruple screening for Down Syndrome. If the content differs based on the likelihood of a high or low chance result, please provide examples of both.
• Letters or result notifications from Non-Invasive Prenatal Testing (NIPT), including examples for both high and low chance results if they differ.
• Any information shared with expectant women regarding these tests (combined/quadruple screening and NIPT), including letters, leaflets, or signposting materials.
• Any materials provided to expectant women about Down Syndrome itself, including guidance on pregnancy and care following an antenatal diagnosis.

I understand that some of these materials may be subject to redactions where necessary to remove personal or sensitive information.

Response

This would be Nil Information – as CLCH does not provide maternity, antenatal screening, or diagnostic services (like combined/quadruple screening or NIPT). These are typically handled by acute hospital trusts with maternity units. Any materials about Down Syndrome provided following screening results This level of specialist counselling and condition-specific information is provided by fetal medicine units or specialist midwives within acute trusts. CLCH is a community Trust.