FOI/2025/26/167
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| Reference | FOI/2025/26/167 |
|---|---|
| Description | Diagnosis of Primary Immunodeficiency |
| Date requested | 06/08/2025 |
| Attachments | N/A |
Request
- The number of unique patients with a recorded diagnosis of Primary Immunodeficiency (PID) in Q2’25(April, May, and June 2025)
- Of these PID patients, what is the number of PID patients treated with Immunoglobulin in Q2’25(April, May, and June 2025) If possible, segment patients by brand used e.g 5 patients on Cuvitru
- How of these Ig treated PID patients are naïve (new starts) in Q2’25(April, May, and June 2025)?
- The number of unique patients with a recorded diagnosis of Secondary Immunodeficiency (SID) in Q2’25(April, May, and June 2025)
- Of these SID patients, what is the number of SID patients treated with Immunoglobulin in Q2’25(April, May, and June 2025? If possible, segment patients by brand used?
- How of these Ig treated SID patients are naïve (new starts) in Q2’25(April, May, and June 2025)?
- The number of unique patients with a recorded diagnosis of Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) in Q2’25(April, May, and June 2025)
- Of these SID patients, what is the number of CIDP patients treated with Immunoglobulin in Q2’25(April, May, and June 2025? If possible, segment patients by brand used?
- How of these Ig treated CIDP patients are naïve (new starts) in Q2’25(April, May, and June 2025)?
- The number of immunoglobulin vials/volume in grams distributed to Central London Community Healthcare NHS Trust in each month for April, May, and June 2025, broken down by product (see below). I would also like to request the number of patients Central London Community Healthcare NHS Trust by brand if available
· Vigam
· Flebogamma DIF
· Gammaplex
· Gamunex-C
· Octagam
· Gamten
· Kiovig
· Intratect
· Privigen
· Iqymune
· Gammanorm
· Subcuvia
· Subgam
· Hizentra
· Hyqvia
· Cuvitru
· Panzyga
· Xembify
· Cutaquig
Vyvgart (Efgartigimod)
Preferably I would like the data in .xlsx or .csv format. Alternatively a table will suffice
Response
Central London Community Healthcare NHS Trust can confirm that this is non-applicable to CLCH as we do not provide Cancer Related services. CLCH is not an acute Trust.
Please see the Trust link below for all the services we offer.