FOI/2025/26/167

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Reference FOI/2025/26/167
Description Diagnosis of Primary Immunodeficiency
Date requested 06/08/2025
Attachments N/A

Request

  1. The number of unique patients with a recorded diagnosis of Primary Immunodeficiency (PID) in Q2’25(April, May, and June 2025)
    1. Of these PID patients, what is the number of PID patients treated with Immunoglobulin in Q2’25(April, May, and June 2025) If possible, segment patients by brand used e.g 5 patients on Cuvitru
    2. How of these Ig treated PID patients are naïve (new starts) in Q2’25(April, May, and June 2025)?
  2. The number of unique patients with a recorded diagnosis of Secondary Immunodeficiency (SID) in Q2’25(April, May, and June 2025)
  3. Of these SID patients, what is the number of SID patients treated with Immunoglobulin in Q2’25(April, May, and June 2025? If possible, segment patients by brand used?
  4. How of these Ig treated SID patients are naïve (new starts) in Q2’25(April, May, and June 2025)?
  5. The number of unique patients with a recorded diagnosis of Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) in Q2’25(April, May, and June 2025)
  6. Of these SID patients, what is the number of CIDP patients treated with Immunoglobulin in Q2’25(April, May, and June 2025? If possible, segment patients by brand used?
  7. How of these Ig treated CIDP patients are naïve (new starts) in Q2’25(April, May, and June 2025)?
  8. The number of immunoglobulin vials/volume in grams distributed to Central London Community Healthcare NHS Trust in each month for April, May, and June 2025, broken down by product (see below). I would also like to request the number of patients Central London Community Healthcare NHS Trust by brand if available

·      Vigam

·      Flebogamma DIF

·      Gammaplex

·       Gamunex-C

·      Octagam

·      Gamten

·       Kiovig

·      Intratect

·      Privigen

·      Iqymune

·      Gammanorm

·      Subcuvia

·      Subgam

·      Hizentra

·      Hyqvia

·      Cuvitru

·      Panzyga

·       Xembify

·      Cutaquig

Vyvgart (Efgartigimod)

Preferably I would like the data in .xlsx or .csv format. Alternatively a table will suffice

Response

Central London Community Healthcare NHS Trust can confirm that this is non-applicable to CLCH as we do not provide Cancer Related services. CLCH is not an acute Trust.

 Please see the Trust link below for all the services we offer.

 https://www.bing.com/ck/a?!&&p=2890531a1b02c590806b0be849ee6151d0dd691b6a5a221a6dc416cccdbeef30JmltdHM9MTc1NDUyNDgwMA&ptn=3&ver=2&hsh=4&fclid=25d7345e-670e-61dd-0f41-262566ee60ad&psq=central+london+community+healthcare+trust&u=a1aHR0cHM6Ly9jbGNoLm5ocy51ay8&ntb=1

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